WABI SABI MOMENTS

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Showing posts with label PCOS. Show all posts
Showing posts with label PCOS. Show all posts

Tuesday, October 21, 2008

My day was....eh.

WHAT THE FUCK? Blogger is so dumb ass I swear. I typed that title and then hit "enter" instead of "tab" and what did the stupid thing do?? SUBMIT THE POST! *falls over* I guess it decided that was going to be the permanent title of today's blog post and although I could delete it so it would disappear and no one would know, I'm not gonna do it, because this is just another example of what a winner day I've had!

Ever had one of those days that volley back and forth between bad and good so you can't really label it either one? Yeah, that was today. Lemme see if I can break it down for ya!

BAD: Stayed up 'til 4 am listening to playlist.com and typing a blog post because Chris was finishing up some computer work and really, any excuse to listen to more music is good with me, even though I KNEW 4 am was a bad idea because it will knock me off for days sleep-wise.

GOOD: Tomorrow is my 5th acupuncture/chinese medicine treatment (I've been at it for 4 weeks total now) and things seem to be working because I started my period today! I know, TMI for some, but I'm not one of those prim women who never speak of such things, so eh. 3 years ago periods would have definitely been in the "bad" category, but since I've only had an non-medically induced period twice in the past 2 years, that's a pretty big fucking deal and since the acupuncture treats pain and such, no "shoot me now I'll give you all the money I have" endometriosis cramps, shocking, eh? And hopefully this means my ovaries haven't given up on ever working again. I may not ever use them for baby making, but god is life hell when they aren't working properly.

GOOD: I talked to my brother on the phone today, he makes me laugh, that boy is so full of shit.

BAD: I talked to my brother today, he doesn't know when to shut up, wouldn't listen when I said I wasn't talking politics with him, and at one point was talking so loud that I could hold the phone 2 feet away from me and still hear him. When he started yelling at me about being a baby killer I'd had more than I could take and handed the phone to Chris because I had to get ready to go to a doctor's appointment and the ranting made me cry (which REALLY pissed me off). Why can't people respect other's boundaries?

BAD: The doctor was almost 45 minutes behind schedule.

GOOD: My GP has the best sense of humor, so we always have good chats and he's good natured about being joked on for running late (he's always running late). We've decided I seem to be holding my own with all the health drama.

BAD: My monthly blood work came back with my iron lower, again. It drops every month since the last infusion. I even started eating red meat again 6 weeks ago to try and boost up the levels since doctors are stubborn and don't get that nothing I eat is going to fix this. So, before we leave NZ in January I'll probably be looking at another 8 hour infusion at the hospital to top up my levels again. YAY! The stain from when the IV infiltrated last time is pretty much faded away...hopefully it won't do that this time.

GOOD: We're going to tweak the meds the Rheumatologist put me on to try and restore the rhythm of my sleep cycle. It's working at the really low dose, but not as much as they want, so we'll go up a tiny bit, starting tonight, so that'll remedy the 4 am rebound shit. I have to get to bed by midnight though. *sighs*

BAD: My blood pressure was still up from that bloody phone call with my brother! The doctor laughed and said he knew I must have been really agitated about something since it's never high any other time. Siblings are a joy, aren't they?

BAD: Drivers on the road acting stupid and trying to get into an accident.

GOOD: Went to the veggie shop and loaded up on all the pretty spring produce!! I know, it's strange, but fresh food makes me happy.

BAD: We ate dinner out because I had no energy after the appointment and errands. But the food was GOOD, so I guess it's a draw? LOL

BAD: When we got home I opened my Inbox and there were non-happy things in there that reminded me way too much of the earlier conversation with my brother, as well as other conversations like it, which made me upset, and since the girlie hormones are doing their thing in my blood, I ended up in tears again!

GOOD: More music, LOUD music, to help the thoughts in my head flow better. Rock music helps when I'm angsty.

BAD: I have to address the emails at some point, but to be honest I just don't know where to begin anymore. I'm so tired of this. So. Damn. Tired.

OH YEAH, and if one more person tells me that pro-choice = pro-abortion, or insinuates that pro-choice means I'm a happy baby killer, I might physically harm them (and I'm not sure I'd label that one BAD either... ;-P)

So depending on how I tally things up, it comes out to BAD: 8-9 GOOD:6-8

Yeah, like I said to begin with, the day was....EH!

Sunday, August 17, 2008

Foreign Body

Two days ago Chris and I were roaming through a store when I came upon a clearance rack with a sweater I thought would fit. Finding clothes here that fit me and look alright is a rarity, and winter clothes even more so, and so I picked it up. They had 3 sizes near my size so I figured I should try on what I thought was the right size, just in case the cut was a bit narrow in the chest.

Once in the dressing room I took off my sweater and t-shirt and turned to take the sweater off the hanger, and caught a glimpse of myself in the mirror. Now, our house only has 2 mirrors, a tiny one big enough to see your face in in the bathroom, and a full length one that is in the "stuff" room that isn't easily gotten to, so I rarely see my whole body in the mirror.

As my eye caught my reflection I gasped, looked away, then looked back in a double take. I couldn't believe what I was seeing, it took my breath away for a moment. It was like I didn't even recognise the body that my head was attached to. This was not the body that I came to New Zealand with at all. Since being here I went through a phase where I gained over 50 lbs in the course of about 4 months, thanks in part to a lovely issue known as PCOS. As if gaining the weight wasn't enough, it also prevents you from getting it back off, at least, until you find a doctor willing to meet you halfway. I do my part. I eat well, cut back on grains, have an elliptical machine that I get on as often as I can (except for when I'm banned from it by the doctor because my arthritis is being a bitch), but in the end I can only do so much and when I can't find a doctor who will read the latest studies and work with me to get this thing under control, well, I'm fucked.

So I'm left with this...foreign body. It is. It's foreign. This is not me. I don't recognise it. I work so hard to nourish and care for my body and this is what I get? Why?

After regaining my breath I tried to smile at myself in the mirror, say "I love you, it's okay, we'll find help soon.", and pull the sweater over my head. It was a bit too small. While I used to have to buy clothes to fit my bust because it was the biggest part of my upper body, now I buy to fit the massive tire situated around a "beer belly" situated around my waist. It's not fair to have a beer belly when I don't drink beer.

I got dressed quickly, grabbed the next size up, and got out of the store. Don't get me wrong, I love me, but I feel like I'm living inside a foreign country, and I'm not talking about New Zealand.

Monday, August 11, 2008

I'm a bad, bad blogger...

Yes, I am. I'm neglectful of my blog. In my defense though, I think of things to post here all the time, I just never actually get it typed! Sad excuse, I know...

Really, this blog is me trying to keep track of all the odd things I get up to health-wise and life-wise. So, how about an update?

Health-wise: Doctors suck. Insurance companies suck more. After deliberating over the "pay out of pocket to play Russian Roulette with the Endocrinologists listed in the phone book" I've decided maybe my best bet is to save my money and go see the "Holy Grail" of doctors when I get back to the US. Granted, that'll be a while from now, but hey, if the medical community as a whole can ignore my problems and keep playing pass the buck, I suppose I can keep coping with it on my own for a little while longer and save myself the humiliation, frustration, and about $360 per doctor's visit! *big grin*

So, I've decided to monitor my blood sugars at home, especially post meal. I know my fasting glucose is never in the "bad" range, but the more reading I've done, the more I've learned that the current "medical guidelines" are missing tons of women with diabetes because while their fasting glucose is normal, their post meal glucose levels are too high, so damage is already being done to their body and they don't know it. We really have something wrong in our medical system when something like 50% of people diagnosed with diabetes will be diagnosed with a diabetic neuropathy at the same time they get the big "D" diagnosis. That means they've had it for years and it's been slowly destroying their body while their doctors have being saying all is well.

I refuse to be that woman. PCOS and it's lovely weight gain puts me at a high risk, family history at an even higher risk, and a previous Glucose Tolerance Test that had me sitting on the edge of "prediabetes" means that odds are with no treatment I'll be diabetic within the next 6-10 years. Except, we don't know how long I've been this way, and if I've had these things since I was 19-20 (which is what I'm quite sure of) at 26 I'm getting rather close to that 10 year mark. Too close for comfort. Now, the elliptical machine in my living room paired with my already healthy eating habits carb and portion wise are fighting back that risk, but with my hormonal profile the way it is nothing is going to help this as much as the medical treatment I need that everyone is too busy twiddling their thumbs to provide.

I should clarify that I'm not bitter, just tired, and frustrated. Both for myself, and others I know of who are getting shafted by the medical system. In the last month I've heard of a friend whose 2 yr old baby died due to gross medical negligence, and another friend whose uncle was diagnosed with terminal cancer, thanks to a doctor who didn't take anything seriously and let his illness to get much worse without proper treatment.

I'm not dead, or dying (at least not today, far as I know) so I think I have an obligation to throw a fit for those that can't anymore. Something has to change. I don't know how I'll change it, but I'll figure something out.